Anxiety, Challenging, Chronic health condition, Chronic Pain, Death, Depression, Doctors, Exhausted, Family, Generalised Anxiety, Grief, Guilt, Menopause, rare disease, Siblings, Tired

Spending the anniversary of my brother’s death in hospital

It’s taken me a while to get this blog post up but I’m finally getting around to it. I was in hospital from the 30th of May to the 4th of June.¬†

My brother died at 12:12am on the 31st of May so in my eyes the 30th and 31st of May are both the death anniversary. 

I had been unwell for around 2 weeks before I went to hospital. The Mesenteric Panniculitis flared up after I weaned off the steroids I got put on in February when I was admitted to hospital. It got to the point where I hadn‚Äôt eaten or drank anything properly for two weeks and I was also in so much pain that I couldn‚Äôt move so I rang my gastroenterologist and he said to go to hospital straight away. Unfortunately that was on the 30th of May and my specialist didn‚Äôt want me to wait to go to hospital any longer. I got to the emergency room at 3pm and it took 7 hours to be seen by a doctor. The emergency room was full and there were no spare beds so they transferred me straight up to the Gastro Ward at midnight. I was awake at 12:12am and I was able to have a little cry but then the nurse came and I had to lock my grief down and answer all the admission questions. My mum stayed with me until I got a bed on the ward but she had to go home to get my dog and look after her. It felt horrendous to be in hospital on the same day that my brother died six years ago. I felt awful making mum sit with me in the emergency room for 7 hours and then have to go home by herself. I couldn‚Äôt do my usual ritual on his anniversary which is watch a super hero movie, light a candle, cry and go to the cemetery. I was in the hospital for five nights. I got out the day before the funeral anniversary so at least I didn’t have to spend that in hospital as well.¬†

My disease is a bloody b*tch of a thing. I spent 3 months tapering off the steroids just to have to go on them a month later. My gastroenterologist wanted to start Infliximab infusions to try and treat the MP (mesenteric Panniculitis) but my veins are so hard to find, small and deep that that treatment plan is no longer an option so I‚Äôm now going to start Humira injections so every two weeks I‚Äôll have to inject myself while staying on the immune suppressants I’m on now. I won‚Äôt be finished with the steroids until the 18th of August.¬†

The steroids also bring back a lot of painful memories because my brother was on them before he died. 

I don’t even know how to feel about everything that’s happened in the past couple of weeks. The steroids, the hospital visit, the anniversary and more sh*t that I really don’t want to talk about is so much stress for me to handle that I feel like I’m going to scream and blow. 

I got my laparoscopy at the start of May to diagnose endometriosis. They found some so I got that cut out and also got botox injected into my pelvic floor to see if that will help with my pelvic floor dysfunction and pain. So far I haven’t noticed a difference in pain and I’m also finding it harder to go to the toilet and get a complete bowel action. I decided not to do my sixth and final menopause injection because it wasn’t making a difference anyway so now I’m just on the pill and I’ll see how long I can go before I start break through bleeding and need to have a period. I am not looking forward to my first period after the laparoscopy and being in menopause for 5 months even though I did bleed all of those 5 months. So basically menopause was a big flop.¬†

The fatigue struggle is real. Steroids cause such bad insomnia that I spend more time tossing and turning than I do sleeping so I haven’t slept properly in months and my chronic fatigue is also flared up from everything. I would love to have a good nights sleep.

Anxiety and depression are going strong still, not helped by the fact that steroids can affect your mood so I’m trying really hard to keep my head above water and to keep going.¬†

Don’t have much else to say.

Keep safe,
Maddy xoxo

 

Twitter: @ChronicMaddy
Instagram: @ChronicMaddy

 

Featured Image: https://www.besthealthmag.ca/best-you/health/tired-and-gaining-weight/

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Anxiety, Body image, Challenging, Change, Chronic health condition, Chronic Pain, Death, Depression, Doctors, Emotional eating, Exhausted, Family, Generalised Anxiety, Grief, Menopause, Panic Attack, rare disease, Self confidence, Siblings, Social Anxiety, Survivors guilt, Tired

Why is life so hard?

Why is life so hard? Why do we have so many struggles? Why can’t life be easy with no struggles and just happiness? Why do we have to have bad times so we can appreciate the good times? Just once I would like things to go smoothly and to enjoy life. From the moment I wake up to the moment I finally fall asleep, it’s a struggle.

Life is pretty shit for me at the moment and that’s just facts. I need things to change and to get better because I can’t keep going on with how it is right now. My physical health drags my mental health down until I’m just this miserable, depressed, anxious in pain mess that no one would want to be around. I mean, I don’t even want to be around me sometimes!

I’ve began tapering the steroids now and I’m also on immune suppressants so hopefully they work and can stop or lessen the debilitating pain I get daily. I also saw the gynaecologist at the hospital and I am officially on the wait list for a pelvic floor Botox trial and also an exploratory laparoscopy to see if there’s any endometriosis causing my pain. I once again have another ingrown toenail so I have an appointment with the surgeon next week to get my third toe surgery. My mental health is not very good at the moment, I’m struggling with the thought of having this rare disease (Mesenteric Panniculitis also known as Sclerosing Mesenteritis) that doctors don’t really know how to treat or anything about. Yes, I am on medication for it (the steroids and immune suppressants) but it’s not a definite that it will help, it’s more of a lets give this a go and see how you respond to it kind of situation. I have a lot of anxiety surrounding my physical health so trying to deal with that is fun… not.
Steroids, what shitty but useful little things they are. The side effects from those are causing my mental health to get worse. I now have another chin that I didn’t have before, I’m extremely irritable and moody and I also now have a beard! I haven’t slept well in over a month, I have acne, I’ve gained weight and I just feel awful about myself. I can’t even look at myself in the mirror right now. The immune suppressants side effects aren’t fun at all. So far I’ve got worsened fatigue, migraines, whole body aches and basically feel like I have the flu without having the flu.
The menopause is going ok. The main problem is the hot flushes but they’re bearable so I’m ok with that.

I just want to know why life is so hard though. Why do we have to struggle and why do some people have a great life with no struggles? Why are some people poor and others overwhelmingly rich? I don’t understand why some people have such a hard life and others don’t; its not fair. I try to find at least one good thing in every day and yet lately I can’t even find one good thing. I tell myself my affirmations every day and I manifest, I connect to my spiritual side and do what I believe in and yet, things just seem to not change or they get worse! I just don’t understand it. I don’t understand the meaning of life. I feel so lost and scared and confused. I want answers and I want my life to change for the better.¬†

I feel like I’m going to cry all the time, I’m constantly full of anxiety and I basically feel like the world around me is spinning into a deep dark hole and I’m going to fall down into it. I’m only 19, I don’t want a life long rare chronic illness that may or may not shorten my lifespan. ¬†

It’s also anniversary season again so that doesn’t help things. March 8th was the 6 year anniversary of my brothers cancer diagnosis and next up is his birthday where he would have been turning 11 and then the anniversary of his death and then the funeral anniversary. All of those within the span of 12 weeks. Great.

I just want to curl into a ball under my blanket and never come out. I don’t want to face another day full of pain and anxiety and grief, I’m exhausted and over it.¬†

I feel so helpless and hopeless. 

Keep safe,
Maddy xoxo 

Twitter: @ChronicMaddy 
Instagram: @ChronicMaddy 

 

Featured Image: https://thewinninglane.com/why-is-life-so-hard/

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Anxiety, Challenging, Chronic health condition, Chronic Pain, Depression, Doctors, Exhausted, Gastroparesis, Menopause, misunderstood, Panic Attack, rare disease, Tired

Update: Menopause and physical health

So menopause is going well so far. I’ve noticed a few hot flushes and I did have some bleeding and some spotting but nothing too extreme. I’m on the hormone replacement patches now and off the pill. I got my second menopause shot today so we shall see if I get some more side effects and if I notice it more.

On the other hand, I was in the hospital for over a week two weeks ago under the care of the Gastroenterology team. I had been having lower right sided for a pain for 2 weeks and severe nausea for a week before that before it got to the point where I had to go to the hospital. My gastro specialist sent me straight to the emergency room and I was able to get a room on the gastro ward under the care of my gastroenterologist and his team. I got a CT scan which showed inflammation of the lymph nodes and thickening of my small bowel where that right sided pain was located. I hadn’t been eating or drinking (because I had such severe nausea) for 3 weeks before I went to hospital so I was put on fluids and also given some good pain relief. I found out I was allergic to morphine so that’s good. I also got an MRI which looked fine apparently. I sent off a feacal specimen to test for inflammation markers and if that come backs positive then I probably have crohn’s disease but because all my scopes I’ve had have come back normal, it’s most likely going to come back fine and rule out crohn’s disease once and for all.

The gastro team and my specialist think I might have some rare autoimmune, inflammatory disease called Mesenteric Panniculitis which is also known as Sclerosing Mesenteritis. The doctors told me that they don’t actually know much about this disease at all and that there isn’t really a way that you can diagnose it for sure so they’re going off my symptoms and also what the CT scan showed. They put me on high dose IV steroids for two days and then tapered me down to oral steroids which I am on for the next couple of months following a tapering schedule. The high dose steroids definitely helped the nausea and some of the pain. I am seeing my gastroenterologist in a weeks time to talk more about this possible diagnosis and a treatment plan. I also found out in hospital that I am severely constipated to the point of a possible bowel obstruction so I am on a very strong laxative regime every morning and night. The doctors told me that my bowels are pretty much completely paralysed right now and they don’t know when they’ll go back to working. Really hoping the paresis of my stomach hasn’t moved down to my bowels and is now causing bowel paralysis. I really really really don’t need that on top of everything.

I’m feeling scared, anxious, frustrated and sad but also trying to remain hopeful and remember that even if I do have this scary rare disease I might have some answers and find a treatment plan that works and I might be able to get some quality of life back. Right now I can barely walk without pain and I am basically on bed rest.

Understandably this possible diagnosis has had a negative affect on my mental health. My anxiety is very intense at the moment (not helped by the steroids) and my depression has also gotten worse. I’m making sure to be aware of my mental health though and talk to people and get some support.

Not sure what else to say.

Keep safe,
Maddy xoxo

Twitter: @ChronicMaddy
Instagram: @chronicmaddy

 

Featured image: http://www.booksinherhead.com/2017/12/life-update-winter-2017.html/

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Challenging, Chronic Pain, Depression, Doctors, Exhausted, misunderstood, Tired

They just don’t get it!

Doctors. You love them and you hate them but most of the time they just don’t understand. They don’t understand how hard it must be to be in chronic pain and to deal with that every day, they don’t understand that when you’ve been in so much pain and so sick for so long ¬†any diagnosis is a good diagnosis. They don’t understand that when you’re in pain every single day and you don’t know why, getting a diagnosis can be life changing in a good way. So when they tell you that your test results are negative with a big smile on their face you nod and say that’s great but on the inside you’re crying and screaming just wishing that they were positive and that you had some answers because when you have answers, you can start a treatment plan and find what works and what doesn’t. When you go to a new doctor and you have to tell them your medical history and you tell them how much pain you’re in they just don’t understand what that means, they ummm and ahhh and write things down.

I had my gynaecology appointment yesterday and she was good as far as specialists go but I still felt like I wasn’t being heard. She told me that I have chronic pain and that she thinks all my pain in my abdomen is from my nerves. She thinks that she isn’t going to find any endometriosis when I can get in and get a laparoscopy which will be in 6 months to a year because the public waiting list is so long. Privately it will cost around $5,000 and because my body is complex I would have to stay in hospital a night to two after the procedure so there’s another one to two thousand. She’s put me on Lyrica which I REALLY don’t want to be on because I know how nasty it is, but I don’t really have a choice. I have to try that for 6 weeks (if I don’t get any horrible side effects and have to stop it sooner) and if that doesn’t work go back to her and talk about medically induced menopause. She’s going to put me on the wait list for surgery in the mean time. So for now I’m still stuck with pain and I probably won’t get any more answers for a year which doesn’t make me feel any better. I didn’t expect to go in there and come back with a cure, but I did expect her to take my level of pain more seriously and do more than put me on a medication which I told her I’m not very fond of and really don’t want to go on. Since I’m now taking Lyrica I can’t take the steroids my gastroenterologist wants me to go on because then I won’t know which is helping if I do start to feel better and be in less pain.

I just want some answers.

Keep safe,
Maddy xoxo

Twitter: @ChronicMaddy 

 

Featured image: https://www.moceanic.com/2018/when-donors-complain/pop-art-frustrated-woman-123rf-2/

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Anxiety, Challenging, Chronic health condition, Chronic Pain, Depression, Doctors, Exhausted, Gastroparesis, Generalised Anxiety, Panic Attack, Social Anxiety, Tired

I’m so beyond exhausted and over it

It’s been five years of pain, tests, hospital visits, being told it’s all in my head, countless doctors, doctors not knowing what they’re doing and doctors not knowing what else to do for me. After five years I thought that I would be better and all my conditions would be in remission and yet I’m actually just getting worse and not better. In the past six months my health has dramatically declined and it’s scary.

My itchy scalp that I’ve had for the past two years is worse than ever, It’s literally itchy 24/7 and I can’t do anything about it, neither can two dermatologists who couldn’t find anything visually wrong with it. I’ve been suicidal because of how itchy it is, it keeps me up at night and I’ve scratched so much that I’ve damaged my scalp and my hair is falling out. I’ve also been feeling suicidal lately because of how tired I am. I’m tired of the doctors and doing all the things that they tell me to do and not seeing results. I’m tired of the medication and I’m tired of the pain. I can’t stand the pain anymore. I can’t stand not knowing what’s wrong with me and I’m exhausted from being tired all the time. I thought that in five years the chronic fatigue syndrome would’ve gone into remission and I’d be able to do more in my life, but nope, I’m just as tired- if not worse- than I was five years ago.

There’s only so much one person can take before they give up and to be honest, I’ve given up a little bit. I am still alive though and I am still looking after myself and that’s what matters right now. I want to find out what’s wrong with me. I want to find out what’s causing me so much pain and this itchy head and I want to get a treatment plan that works. I have not gone through five years of hell and pain to end up not knowing what’s wrong with me. I would just like to get some relief from the pain and the itchy head though, that would be really nice. I would also like to wake up in the morning and not be so tired that even though I have to pee really badly I can’t get myself out of bed until I’ve nearly wet myself.¬†

As of now I am taking my pain meds to help try and manage the pain, I wear cotton gloves to bed so I don’t scratch my head at night, I’m on antibiotics to see if that helps with my bloating and to see if I have SIBO and I’m seeing my pelvic floor physio once a month to work on the pelvic floor dysfunction and the bowel incontinence.¬†

I don’t think I’ve ever really talked about the bowel incontinence and that’s because I’m embarrassed about it. It’s not fun to be out in public and then all of a sudden have to run to the toilet so you don’t sh*t your pants and be so worried about the fact that you are so close to pooping yourself in public. Just the other day I was out and luckily enough there was a hospital right next to me so I could speed walk and try to find a bathroom before I had an accident. The treatment that I’m doing for it is also embarrassing, it’s called rectal balloon training and it sucks.¬†

The itchy head feels like ants crawling on my scalp combined with a burning feeling and it won’t stop. Like I said before it keeps me from sleeping and it’s itchy 24/7. I’ve tried so many shampoos and lotions and meds and nothing will help it. It’s making me suicidal and is the main thing apart from my abdo/bowel pain that is getting me so down. I’ve got a referral to a neurologist now to see if they can help me seeing as how no one else can figure out what’s making it so itchy.

My gastroenterologist said that the CT scan and ultrasound I got done might have showed crohns disease but it might also be nothing so he wants me to start steroids after I see the gynaecologist and see if the steroids help the pain. I’m seeing the gynaecologist in October and I’m going to ask her about endometriosis as a possible cause for all my pain and womanly problems.¬†

All in all, I’m not feeling too great and having a really hard time. I’d like the pain, fatigue and itchy head to fu*k off. I’m keeping safe though and talking to people and have a support team. I’ll be ok, just right now I’m overwhelmed and reached my limit. My anxiety has also been really bad so that sucks.¬†

Keep safe, 
Maddy xoxo 

Twitter: @ChronicMaddy <—¬†

Featured image: https://me.me/i/shes-strong-but-shes-exhausted-r-h-sin-2745442

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Anxiety, Challenging, Change, Chronic health condition, Death, Depression, Doctors, Exhausted, Family, Gastroparesis, Generalised Anxiety, Grief, Mother and daughter, Panic Attack, Siblings, Sisters, Social Anxiety, Step-father, Tired

2017

Well another year is over! I survived another 365 days of being chronically sick, mentally sick and grieving. I stayed alive to see another year through. I should be proud of myself right? I wish I could say that 2017 was my year, but it really wasn’t.¬†

Here’s an overview of what happened in 2017:

The best thing to happen in 2017 is that I got my puppy Asher in June! She is the sweetest little cavoodle, although she does have a bit of a mean side like her Mum… (me)ūüėȬ†She is now 8 months old and going through her terrible threes a little bit. Yikes, indeed. But when she’s not running around trying to chew everything and destroy tissues she is loving and loves to give you hugs and affection. She has been a great distraction and friend for me but that’s not to say that it’s been easy looking after her. There are some days when I’m just too exhausted emotionally and physically to give her what she needs (a walk, attention and to be played with ect) and that’s where my Mum steps in. Sometimes I wish that I didn’t get her and have the extra responsibility but I guess that extra responsibility is what I need to make sure I don’t become a complete hermit and let myself get sucked into the dark hole of depression and lay in bed all day. Asher makes me get up out of bed, feed her and look after her. I love her so much and could never re-home her but I’d be lying if some days I thought it would be easier without her… Those thoughts usually only occur when like I said before, I’m exhausted -usually from life- I’m in a lot of physical pain or when I’m having a really hard time with my anxiety and depression. It’s nice though that when I am feeling so down she comes into my room and climbs onto my bed and attacks me with her kisses and hugs. She can make me smile when I feel like I might never smile again.

Here’s a photo of one of the funnier ways she’s fallen asleep. ¬†

IMG_6357

She also has her own Instagram page if you’re interested!¬†https://www.instagram.com/asherthecavoodle/

There was also a lot of bad sh*t happen in 2017, mostly regarding my physical and mental health. My physical health got so much worse which I didn’t think was possible but I was so wrong. My chronic fatigue became unbearable to the point of me literally not being able to get out of bed or I was able to just make it to the couch and that is where I stayed for the rest of the day. My gastroparesis also went through a couple of pretty bad flares which left me in a lot of incredibly bad pain and nausea. My medication for that also stopped working like it used to so I stopped that for about a month to give my body a break from it and just stuck to soft foods while I let my body rest and now I’ve been back on that for the past few months. I didn’t lose anymore weight, I actually put about 2kgs back on. Dammit! I tried to walk everyday but between my physical health and mental health I had a pretty hard time with that.¬†

I joined my local youth programme within my council and went to one of their programmes which was once a week for 4 weeks. That didn’t help at all with anything and was really just a waste of time. I never heard back from the youth worker after that finished though so no more help from them.¬†
I went to a programme at the outpatient pain clinic at my local hospital. That was for two days and once again, I didn’t find helpful at all…¬†

I really suffered with my mental health. There was a period a few months ago where I thought I was going to end up back into the psych ward but I was able to medicate myself and find a way out of that suicidal hole. I still have extremely bad anxiety every day so me going to both of those programmes I mentioned above was such a big deal for me even if I did come home and have a  total breakdown and panic attack over it. 
I continued to see my psychologist regularly and even spoke up one session and told her that what we were doing and some of the things she said to me wasn’t helpful. That was a massive step for me because I had never said anything to her about how what she was saying I found unhelpful before.
I started seeing a new psychiatrist whom I have been seeing every fortnight. She has been very helpful medication wise but there have been a few things she has said in our sessions that I found to be very insensitive and hurtful. I tried talking to her about how I found those things she said insensitive and hurtful and I was semi-able to say what I wanted to say but I also found myself lying to her about something because I felt like she would never hear me properly…
She started me on a new medication to help me sleep and with a few dosage changes we have found a dosage that usually gets me to sleep and keeps me asleep. It doesn’t work all the time but I don’t expect it to work every single time. She also started me on a new medication to try to help me with my chronic fatigue and I guess it works the tiniest bit. It takes a very thin layer off of my fatigue so that I’m able to get dressed and move off the couch but it hasn’t helped with my brain fog or given me energy. I don’t know if a higher dosage would help or not but for now we’ll keep it at what it is. She also gave me a new medication for my anxiety and panic attacks and that definitely helps but I try not to take it unless I really have to and can’t handle my anxiety or if I have to go somewhere like to a medical appointment. I also take it if I’m having a really hard day with my depression and grief.¬†

Yes my grief is still here and active. I still miss C every single day and struggle with him not being here. I don’t cry as much as I used to and I don’t know if that’s because I’ve gotten better at suppressing my overwhelming grief or if I’ve become more detached from my feelings but there are still days like I mentioned before where the grief is so bad that I can’t handle it and I have to take something to help me get through the day. ¬†
2017 marked 4 years since C’s death and it also would’ve been his 9th birthday if he was still alive.
A few people said this year that it was time that I moved on from C dying and that it had been long enough and to them, four years might sound like a long time but to me, it feels like it happened last week or a year ago. People also said that C dying was the cause of all my health conditions and to that, I say no, it wasn’t. It is so unfair and disgusting that they are happy to blame my baby brother’s death for the reason I’m sick. I had stomach problems since I was a BABY! NOT only after C died. Sure, the emotional stress put a strain on my body and therefore triggered or flared my stomach problems up but him dying didn’t cause them. Same with my anxiety and depression. I was already starting to get anxiety from school and my stepfather before C died and I was also starting to show signs of depression before C died.
I will continue to grieve my brother because I have that right and if his death and my grief stops me from doing certain things in life then that’s fine too. What I went through was so incredibly horrific and I have the right to take as much time as I need to heal and process what happened. My brother dying, my right to take as long as I need to grieve.

Since we’re talking about siblings, my sister H comes to mind as one of that bad things of 2017. She continued to hate on my Mum and I for saying that we didn’t like her boyfriend and therefore pushed us out of her life. I decided to write her a letter which she read but never responded to and then in April after not hearing from her for months she randomly messaged me one day asking for my details for her will. I messaged her back and said that I hadn’t heard from her for months and then all of a sudden she wanted my details for her will and that that isn’t ok. She then decided to tell me (all through message) that she had a brain tumour not that I would care! Yes, you read the right folks. My sister told me over message that she had a brain tumour and then added that I wouldn’t care.
(Side note: For those of you who are reading ¬†this blog post and who haven’t read my other posts about my brother C, he died from a rare, incurable and inoperable brain tumour at the age of 5 and from the day he got diagnosed to the day he died it was 12 weeks.)
So of course I rang her straight away and asked her what was going on and what did she mean when she told me that she had a brain tumour and she told me that she had a MRI done and they found a brain tumour. Well, that brain tumour ended up being a pretty common pineal cyst, NOT a brain tumour.
The fact that she said and I quote ” I have a brain tumour not that you’d care” hurt me so ¬†much. The next day I rang her and said to her that if she wanted to talk about the letter that I sent that I would be happy to talk to her but I also said that if she wants that to happen that she has to contact me and that I wouldn’t chase her around trying to get her to talk to me. Well, I never heard from her again so I guess she didn’t miss me that much and doesn’t want to have me in her life…¬†
I am so hurt that she basically disowned me but I have to accept that I guess. H will never be able to be the sister that I want and we’ll never have the relationship that I want to have. And before you say “But you’re family” or “Maybe in a few years you two will reconnect”, H and I have always had a very strained relationship and the fact that she dislikes my Mum so strongly I can’t handle. I don’t want to have someone who can feel so negatively about the ONE person in my life who has been there for me through everything and who is my best friend. Anyway, that’s another story for another day.¬†

So basically 2017 was a big ball of sh*t! It was meant to be my year for everything to change from 2016 but that didn’t happen. I really need 2018 to be different; I don’t know if I’ll be able to survive another year like 2017 and have nothing change. I will take all the steps that I can towards things changing this year but I also think people in my life need to remember that I’m not just fighting mental health issues OR physical health issues, I’m fighting BOTH at once. It’s not one or the other for me.¬†

I hope 2018 will be the year that things change for the better for you people reading this and that you get everything you want. I also hope that 2017 wasn’t too bad for you.

Keep safe,
Maddy xoxo  

Featured Image: http://imperial-properties.com/en/2017-happenings

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Anxiety, Body image, Challenging, Chronic health condition, Depression, Exhausted, Friends, Generalised Anxiety, Panic Attack, Social Anxiety, Tired

Anxiety Anxiety Anxiety Anxiety Anxiety Anxiety Anxiety Anxiety!!!

I’ve talked before about my depression, health conditions and I’ve mentioned my anxiety before but I haven’t dedicated a blog post to what is a big part of my life and that is, you guessed it, anxiety! *Insert clapping*

Anxiety is a tricky thing as it’s different for everyone who gets it and the symptoms that people experience with anxiety will also be different. Sure, anxiety sufferers might experience SIMILAR symptoms but they will never be EXACTLY the same. There are two main types of anxiety that I’m aware of and they are generalised (you get anxious about everything and anything) and social (you get anxious about going outside, seeing people, talking to people ect) anxiety.¬†I have both generalised and social anxiety.

I can’t tell you which is worse as they are both incredibly bad and somedays one will be worse than the other and then other days they’re both at the same level of anxiousness. My anxiety has definitely gotten worse over the years and now I have a hard time leaving the house just to take the rubbish down. When I’m sleeping I have anxious dreams because of my PTSD and when I’m awake I’m sometimes shaking with anxiety doing absolutely nothing, so basically I am just one big ball of anxiety.

I’ll talk about my social anxiety first:
There’s a big difference between being nervous about going somewhere new and being anxious¬†about going somewhere new. Being nervous is normal and a useful human emotion but being anxious takes it past the level of being useful and a good human emotion to being a draining and fearful experience where there is no need at all to be fearful and to act and feel like you’re being chased by a lion about to be eaten!
I’d like people to stop using the term ‘anxiety’ so loosely and about everything when in fact, they are just NERVOUS and or excited NOT anxious.

A lot of my social anxiety revolves around how I think I look because of my weight which makes going out anywhere incredibly hard. I have a hard time going out and eating because I feel like everyone will be looking at me and judging me for eating. I can’t stand crowded places with too many people and loud noises and I have a very hard time talking to people like shop assistants when I’m out. ¬†I have a constant monologue of unhelpful thoughts running through my head the whole time I’m out and some of them are: “That person is looking at you because you’re fat” and “People are looking at you because you’re fat and eating” and “People are looking at your acne and that’s all they’re seeing.” As you can see, those thoughts aren’t nice or helpful and yet no matter how hard I try I can never stop them while I’m out. I’m always fidgeting and looking like I’m going to hurl and I know these thought aren’t rational but in a society where it’s openly known that you’re judged on the way you look, it’s hard not to have those thoughts and it’s even harder when you have no self confidence at all.

My social anxiety really inhibits me from doing a lot of things like going out with my Mum and spending time with her or going out and trying to find some friends. Social anxiety is not fun at all and I hate it, I hate everything about it because we know that it’s not rational to be so scared of seeing and talking to people that you want to cry, throw up and run away (all at the same time I might add) and yet you can’t stop feeling like that. Pushing past all those anxious feelings is really freaking exhausting which is why after I come home after going out anywhere I have to have a nap¬†ūüėā¬†Not only is pushing past those anxious feelings to actually go somewhere exhausting but consciously challenging all those anxious and unhelpful thoughts is exhausting as well, it almost feels like a full time job…

And as I right this blog post about anxiety I am starting to get anxiety… how effed up is that?!¬†ūüôĄ

Now I will talk about my generalised anxiety:
Having generalised anxiety means that I am¬†anxious nearly all the time and¬†usually about nothing. I could be sitting on the couch watching TV and feel like I¬†can’t breathe and my heart is racing and yet there’s no reason for me to feel¬†anxious at all. Even when I’m sleeping my dreams are anxiety inducing and so I¬†wake up with anxiety. I always feel like I am in that fight or flight state and that I can never properly relax, I am¬†always on edge and¬†always ready to go go go (even¬†though I have no energy).

Continuously feeling¬†anxious for no reason is hard work. I can sit¬†somewhere quietly and do my breathing exercises or distract myself but I still¬†can’t seem to quit being anxious. Being anxious has become part of¬†who I am now and I hate it. I don’t like¬†feeling anxious all the time about nothing and¬†never being able to relax, I want to be able to sit¬†down and give my body a rest.
I get anxious about making plans for the day, taking the rubbish out, Mum going anywhere and sometimes I get anxious just looking outside my window…

Nearly everything causes me to have anxiety and therefore continuously makes my body react like there’s danger and release that adrenaline and cortisol that your body produces when it’s in danger and yet, there is no danger for me at all. My body and mind are always on high alert and can never get a proper rest unless I take my anti-anxiety medication. I’m not against medication at all but I don’t want to take my anti-anxiety medication everyday just so I can get through the day without having all the feelings of anxiety and the starting symptoms of a panic attack, I want to be able to get and work through my anxiety myself but everything I try just doesn’t work. I have worked with many counsellors and psychologists to try and help me with my anxiety and apart from them all giving me the same techniques to use, they just don’t work.¬†

My anxiety also makes all my other health conditions worse. When my anxiety is worse it makes my depression worse which then makes my health conditions worse which then makes my anxiety worse and it’s a cycle that I can’t get out of.¬†

Here’s a little chart I made:

anxiety chart screenshot.png

Living with anxiety is a daily struggle that I have been dealing with for nearly 5 years now and you’d think that I’d get use to it by now but I haven’t, I’m still surprised over the level of my anxiety sometimes and how I can have anxiety for no apparent reason. I will continue to fight it and maybe one day I won’t have it anymore but for now, It’s making my life 1000000x harder and its just another thing that I have to deal with.

Keep safe everyone and know that you are not alone with your anxiety.
Maddy xoxo

 

 

(Featured image: https://www.jmrocketreporter.org/arts-entertainment-2/staff-columns/2017/05/18/stress/)

 

 

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