Anxiety, Body image, Challenging, Chronic health condition, Depression, Doctors, Exhausted, Family, Friends, Gastroparesis, Panic Attack, Self confidence, Social Anxiety, Tired

I’m struggling and I’m scared…

I’m not really sure what to write in this post because I’m not really sure how I’m feeling about everything… I think the main struggles I’m going through at the moment is my health and trying to create a life around my health. So lets talk about my health.

I got three blood tests done and they all came back positive for Systemic Scleroderma (I’ll just call it scleroderma). Scleroderma is an autoimmune disease that changes the amount of collagen that you make; it gives you too much collagen causing very painful skin, muscle and joint problems and it can also affect your organs causing stuff like kidney failure and lung disease. There are many different types of scleroderma and the one I tested positive for is the systemic one which means it attacks my organs along with my skin (side note: I could have another type of systemic scleroderma that doesn’t affect your skin at all but I’m not sure yet if I even have it). I have an appointment with a rheumatologist in October to get checked out more and to get more tests done to see if I for sure have it, so right now it’s a waiting game. I’ve also been having so much more abdomen/bowel/pelvic pain lately and I can’t find a cause for it. I got a colonoscopy,  gastroscopy and a CT scan done and all of those tests came back normal so I have no idea what’s causing the daily double-over pain I’m getting. I honestly can’t tell you how bad the pain is and how hard it is to handle on a daily basis. I’m also booked in to see a gynaecologist in October because I’m starting to wonder if maybe all my pain isn’t actually in my bowel but on the outside with something like endometriosis. I’ve always had severely painful and heavy periods but I’ve always swept that under the rug but maybe it’s time I start looking out of the box because I can’t handle to be in so much pain anymore. I’m also not sleeping well and if I don’t have something to help me sleep then I will literally not sleep all night. My psychiatrist gave me two medications to try and one of them I was allergic to and the other one doesn’t help me at all so once to twice a week I’m taking seroquel so I can finally get some sleep because me and not sleeping don’t mix well together. 

In my title I also wrote that I was scared and it’s true, I am scared. I’m scared because I don’t know what’s wrong with me and what’s causing all this pain and why my bloods are abnormal. I’m scared because I don’t know how to help the pain and because I have no idea what’s going to happen to me. I don’t know how to create a future when I don’t know what’s wrong with me and also when I’m so tired and in so much pain. How am I meant to do anything when I have a hard time getting off the couch? I just don’t know what to do. I do know that I want to finish VCE through online schooling again but then all the ‘buts’ come and I psych myself out of calling the person I need to call. A major thing a part from the pain and fatigue that’s stopping me from calling them is the fact that my brain fog is so bad lately that I’m having a really hard time reading and putting a sentence together. I’ll proof-read this post but I’m sure you’ll find so many mistakes reading it and that’s because I just don’t see them. And also, what if I completely suck and can’t even pass year 11 and 12, I mean I passed year 10 by a millimetre.  

I have other stuff going on that I don’t want to talk about but it’s stressing me out and causing a major panic attack. 

I’m just having a really hard time with where my health is at and trying to remember and remind myself that I can still have a future even if I do have scleroderma or endometriosis and that I can make a life around the pain. I need to work on reminding myself that I am worthy of a happy and fulfilled life and not a life full of pain and loneliness because that’s another thing, I am so freaking lonely. I have my mum and I know that I’m lucky because some people don’t even have one person and she’s my best friend who I can go to with anything but sometime it’s not enough… I need someone else to hang out with me and to be my friend. I need some more support. 

I also saw a dietician the other month and a part from telling me that she was concerned about my pain and that I needed to get that checked out, she said that she couldn’t do anything to help me to lose weight because I’m eating right and doing what I can but it’s really hard with my stomach and it’s condition because it doesn’t digest properly, I have no metabolism and what I can eat isn’t that great. I can have some veggies and salad but too many and I feel so sick and have such a bad stomach ache. It was hard to hear that she couldn’t do anything to help me lose weight because that’s still a big problem I’m trying to deal with. 

I don’t think there’s anything else I want to talk about…. I just thought I’d sit down and try to write out some of my feelings and worries… 

Keep safe,
Maddy xoxo 

 

Featured image: https://www.channelweb.co.uk/crn-uk/news/3026573/why-are-outsourcers-like-capita-and-bt-struggling

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Anxiety, Body image, Challenging, Chronic health condition, Depression, Fat shaming, Gastroparesis, Generalised Anxiety, Heat, Mother and daughter, Panic Attack, Self confidence, Social Anxiety, Summer, Vegan

Summer sucks, bring back winter.

Summer. You either love it or you hate it, and for me, I despise it. I hate everything about summer from the heat to the bushfires to seeing perfect skinny people walking around showing their perfect bodies in shorts and bathers while I’m over here in my black maxi skirt and top trying not to go up in flames from overheating like a car engine.

Not only does summer make my self hatred and lack of confidence go down even more, it makes all my health conditions 10x worse. My chronic fatigue gets worse, my POTS gets worse but the main thing summer does would have to be the fact that my anxiety and depression plummets even more.
Winter is good because everyone is bundled up in jackets and scarves and you fit in, but in summer people try to wear as little clothes as they can without being arrested for public indecency. For someone with no confidence and self esteem and who finally gets the courage to go outside, it is so hard to see so many people showing off their bodies and walking around like they don’t have a care in the world. I on the other hand, spend an hour trying and retrying all my clothes on to see what I feel looks even remotely ok on me and even then I’m still hating on myself and just want to hide. I hate my arms so much that when it’s 35degrees outside I’m still wearing a light jacket-y/shawl thing so my arms aren’t showing. The other problem is that I only like to wear black maxi skirts so when I have to walk anywhere the inner part of my thighs start to chafe and then I’m stuck with a horrible burning and stingy feeling every time I take a step.
Another problem I have when trying to find clothes for me to wear is that because I’m so bloated all the time from the Gastroparesis I look pregnant and so I can only wear loose fitting tops and if I do find a dress that I don’t hate and doesn’t highlight my muffin top, I have to suck my tummy in the whole time I’m out and that sh*t is painful after a little bit!

So between the struggles of trying to find something to wear and the inflamed self hatred I have from seeing skinny people out in their shorts, I end up staying indoors most of summer! That gets expensive though because then you have to have the air-conditioner on all the time and those bloody rising electricity and gas prices… annoying much?!

I have a hard enough time regulating my internal thermostat when it’s not boiling hot, but when summer hits I basically shut down; I overheat and feel like I’m going to pass out alot and I can never get cool. My hot flushes get worse and the pounding heart I get thanks to the POTS also gets worse too. Oh and sleeping! My god that’s an even bigger nightmare every night. I toss and turn and then I get Restless Leg Syndrome so I have to stand up and try to walk around my house until the pain of that goes away but then when I lie back down it comes back again. I end up sweating and panting because my two fans just aren’t enough to get me cool so I have to get up and go to the lounge room and sit under the aircon for a little bit until I’m cooler and then try to get some sleep. Oh and if I had to go outside that day and walk around, I also have to be mindful of the chafing I experienced so I can’t sit or lie down with my legs closed so that makes trying to sleep that little bit harder.

I wish I had the confidence to wear whatever I wanted whether it be a cute dress or a skirt that goes above my knees or a cute singlet top without worrying about how I look but I just can’t do it. I become even more aware of how I look and have a harder time with my anxiety and depression and all those unhelpful negative thoughts I get. I am constantly trying to cover up my stomach with the little jacket/shawl thing I’m wearing so no one can see my love handles or that my bloating is really bad that day and I can’t suck my stomach in at all so I end up looking 7 months pregnant (this is not an exaggeration btw, I genuinely end up looking heavily pregnant sometimes because of the bloating associated with the Gastroparesis. On a ‘normal’ day I look around 4-5 months pregnant and I can kinda suck my stomach in.)  I end up fidgeting more and have to make sure that my arms are covered and I am so in my head that if I’m spending quality time with Mum, I’m not really there with her because I can’t relax and enjoy myself.
I end up feeling like a sweaty, pregnant looking beached whale. 

Summer sucks all around for me and I don’t know if I’ll ever enjoy it… 

Keep cool to the people experiencing summer at the moment and to the people in winter right now, I’m super jealous. 

Maddy xoxo 

Twitter: @DMWAAG
Email: depressedmesswithanxietyandgrief@outlook.com

 

Featured image: https://me.me/i/i-feel-like-the-wicked-witch-in-this-heat-im-18479222

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